Monday, 12 November 2012

An Update (taken from my Facebook post)

UPDATE: I just wanted to update everyone on my situation, I'm still extremely unwell with the flu and general CF too. I'm very poorly and we are all still unsure whether I'm going to get through this, it's extremely scary and with a lung function of 11% I can't take any more drops. My body is completely weak, exhausted and I haven't had the energy to even walk to the toilet the past few days. With the flu, it seems there are like 3 stages the first being muscle pains and high temperatures, the second phase is the same but with cold-like symptoms, now I've just started the 3rd week of having the flu, this is the scariest because it's the phase when you have the first symptoms a little less but you have literally 0 energy and are basically bed-bound. It's definitely true, I've barely left my bed or moved from the sofa, it's taken all my energy just to keep my eyes open at the moment :(

Already being as sick as I am with CF and feeling exhausted and
 sick most of the time this is proving to be exactly as difficult and scary as I imagined (and was warned by my GP and CF team) they have warned me this could be it for me if I don't get through it, but with all the hope and tiny amount of energy I do have I'm fighting, literally with everything I have. And to those who wonder why I'm not in hospital, it is because I have 'wishes' and 'plans' in place regarding end of life and I don't want my life to end in hospital, a place I've always tried to avoid and to end my life there would be against everything I wish for, I want to be at home, comfortable, surrounded by my loved ones, with my pups and I'm under the care of the hospice if things do go that way so we have plans in place - but I'm still positive, even with everything life is throwing at me right now, the flu, broken wrist and some other personal issues - I will beat it all and get through everything, no obstacle will get in my way - it's new lungs or nothing I'm afraid :D 

But anyway, I ask you all, please help me to get through this, pray, wish, cross yours fingers - whatever works, please do it and help me keep going strong because I'm still hopeful my lungs will come, a friend told me recently just when everything seemed like life was going to pot for them and they were slipping away, life was near the end, the call came, their new lungs came just in time. I'm hoping this is how it will work for me too. 

I'm sorry this post is so long but I feel I've let people down not updating my blog regularly or posting many status/replying to messages but now you know why, I'm probably asleep lol.
Thanks for the support and hopefully my next update will be better, either I've overcome it and beat the flu, or even better - I've got 'the call!'


Anonymous said...

You don't know me Kerry but I always read your blog and I have CF myself. I'm really hoping that you will get the call soon, it must be absolutely terrifying and I think you are very brave.

Anonymous said...

Hello Kerry
I look at your blog every day hoping for an update and hoping even more you have received the gift of new puffers. You don't know how inspirational you are to so many people and it's wonderful you are able to blog when you are clearly so very ill. I will be praying so hard for you as will all my friends who wait daily for updates about you so hopefully your next blog will be the one I long to read. I do not have CF but am a nurse working with severely disabled children.

Applebypie said...

I will pray and hope that you get through this and are well enough to get your new lungs Kerry. I visit your blog and love to see how you are doing. Hang in there - a moment at a time - each one closer to the day when things will be better. Sending you lots of love. Xx

Ronnie Sharpe said...

Prayers coming your way.

Anonymous said...

Dearest Kerry
Keep fighting sweetheart, You are a very brave beautiful young woman and clearly loved very much. Praying for the call and thinking of you constantly
Kay xxx

Mother of daughter aged 21 with CF

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