Wednesday, 10 October 2012

Long Overdue Update x

I'm sorry I haven't blogged in about 2 months, I've been extremely poorly with my CF healthwise but I've also had this horrid cold which has knocked me for six, I'm still suffering from it and feeling like poo, on top of being ill too grr lol. I have barely been on facebook much at all so there haven't been many updates on me lately, I'm sleeping a lot more than ever before as I'm just so incredibly weak, it's like my body just wants to give up, I've had a couple of literally 'near death experiences' where it didn't look like I'd pull through, but there is always something in the back of my mind saying I can't go yet, it's not my time. Something seems to work because I do pull through, but I don't know how many more of these extreme set-backs my poor weak body and failing lungs can take.

It's been a tough time lately, my emotions have been more up and down than a rollercoaster. I lost a good friend, just 15 years old, who was waiting for new lungs that never came in time.

My sister gave birth to my little nephew Keaton and that was great and cuddling him and spending lots of time loving him picked me up, but at the same time, made me wonder if Josh and I will ever have our own child, we have our pups they are our babies but will I ever be a Mummy? I was told by my transplant co-ordinator if everything is going smoothly after transplant, although it is still a risk, about 2-3 years later we could try to start a family, it's just everything is always hanging in the balance, will I, won't I, if I don't get a transplant it's never going to happen.

Then my brother in law (Josh's bro + his girlfriend) also gave birth to a little girl Maisie, so surrounded by newborn babies at the moment!

I only like to update my blog when I have something to talk about or positive news, but I've been a bit down emotionally and on top of that I am feeling very poorly. I believe my last blog was me starting NIV which never happened because my hospital doesn't seem to have any communication! So still fighting to get that.

If you'd like to keep more updated on my situation when I'm not blogging you can join my transplant group on facebook the link is here : Kerry's Transplant Group or it's also at the side of my blog, over there somewhere >>>

Sorry for the very long delay in blogging, I've certainly had writers block and I've been writing quite a lot of 'private' blogs which I will hopefully publish sometime soon, but for now I don't feel the time is right.

Oh the good news - I finally hit my target goal weight of 50kgs! I was thrilled and cried with happiness, I just seem to keep on going and going, although with this cold I have nasty tonsilitus so I'm not eating as much, just soft foods lol. And also, the pups turned 1 on the 25th September, we had a mini doggy party, it was a lot of fun and just a great reason to get all the family round for fun :) had a fab time, although extremely exhausting! Thank god they only have a birthday once a year :P

Finally, I have my flu jab on Saturday which I'm not looking forward to as I always seem to go a bit under the weather after the jab and at the moment with this rubbish cold, I don't know how much more under the weather I can go!!! We will see, going to Pap on Friday for emergency clinic hoping to add in another strong IV so I can knock this nasty bug on the head, because to be honest I've had enough thank youuuu, lol!

Sorry for the lack of blogging and as I said, feel free to become a member of my group, I update it a lot more regularly at the moment than I do my blog and not just CF/Transplant things, also put general life and funny picures on there, of me, the pups, etc.

I hope you are well and thank you for the continued support to everyone who had sent concerned emails, wondering if I'd disappeared off the face of the Earth lol.
Lots of love


Anonymous said...

Please don't think you have to feel fine when you blog, your blog is about the journey you are on. Tell it how it is. I wish your tx would happen like NOW.
Jewel Metcalfe

Anonymous said...

oh Kerry. Please hold on. Your great courage and determination inspire me, and the fact that you can still add LOLs to your blog break my heart. I know how poorly you must be feeling.
You have so many people rooting for you, people that don't even know you, and that shows how special you are.

Charlotte said...

Keep going sweetie, praying that important call comes soon xxx

Anonymous said...

Keep fighting Kerry!

We're all rooting for you.

Sorry to hear that you've been feeling so rubbish but great news about your weight.

Hope you feel very much better very soon

staciep90 said...

Hey Kerry, chuffed to see you blogging :-). I believe your call will be coming soon and you just have to hold on untill it does. I know easier said than done.

Lots of positive thoughts are on there way :o)

Stacie xoxo

Anonymous said...

Hi Kerry
So pleased you managed to check in. Everytime i read that someone has had their transplant on the CF forum i always pray it is you.Your courage is outstanding and please please let that call come soon.
Kay xxx
Mother of daughter with cf aged 21

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