You wait ages for a bus and two come along at once! Well that's whats happened with my blog, I've had nothing to write about for a while and then two big things happen within 2 days of each other! So here is yet another blog :)
I have received a letter from Harefield saying that my pre-transplant assessment is on the 23rd November. I will go there for 1 day, during the morning I will undergo various tests such as, lung function, blood tests, x-ray, ECG and ECHO (heart scan.) Then in the afternoon I will meet with the doctor to discuss lots of different things and see whether I'd be a good candidate for transplant. If they believe I am, I will then go back to Harefield for a 2-day assessment, which is 2 days of yet more tests where I will then be told whether I am going to be put on the list or not.
I am very scared as is to be expected as this is a major thing and the results could be the difference of whether I can have a transplant or not. So it is a pretty big thing. I am also slightly excited because I've been working so hard to get to this point and I was worried after my referral was sent off, that I wouldn't even get an appointment, I also thought they might have seen my weight and just completely ignored me and not even bothered seeing me. So that in itself is a positive :)
So now I really need to work super duper hard to get my weight as good as possible in preparation for the assessment, the higher my weight on the day the better my chance of being listed!
:)x
4 comments:
Hi Kerry,
I have been following your blog for a few weeks now. I am originally from the UK but live in the US. I am so delighted that a beautiful young girl can see the light at the end of the tunnel! I will be following your progress and wish you all the luck in the world!!!
Great news that things are moving on and that you are being offered a date for a transplant assessment. I know how I felt and know that you are apprehensive.I hope that all the tests go well and that you are able to get answers to the questions you have.I will be following your progress and sending out lots of positive thoughts about the outcome:)
Hey Kerry,
I have been following you for a few months now, I've said it before and I will say it again ... YOU ARE AMAZING! you are so positive and when things are down you make them up! you are so brave and looked so beautiful on the "live life then give life" campaign poster! whoever said you don't must be blind! I live just outside of ipswich and if I ever happen to bump into you, I will tell you how amazing you are!!!!!
Stay strong and you WILL get on the list!
:) x
Hope the assessment goes well! x
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